Middlesex Hospital records ALL gone says UCL - centre where secret HIV tests were carried out on Haemophiliacs
Letters and e-mails obtained by Factor 8 have revealed that the University College London Hospitals NHS Foundation Trust (UCL) has told the Infected Blood Inquiry that it holds no documentation relevant to the Inquiry.
Originally, the Inquiry had asked UCL to produce documentation by 12th September 2018, but at the request of UCL, an extension was agreed and the new deadline provided by the Inquiry was 21st September 2018.
A letter sent by the Trust’s Chief Executive on 21st September 2018 to the Inquiry said inter-alia:
Following the search, I can confirm we have been unable to locate any stored relevant documentation relevant to the Terms of Reference of the Infected Blood Inquiry.
On the morning of the Infected Blood Inquiry’s preliminary hearings (Monday 24th September 2018) a member of staff from UCL sent the Inquiry an email which said inter-alia:
I'm aware that the Inquiry starts today and I'm sorry that you might not get our response in time, so please accept any apologies for the delay.
John-Paul Westwood, Consultant Haematologist, has undertaken a thorough review here and confirmed that we have been unable to find any stored relevant documentation relevant to your Terms of Reference. Should you wish to contact John-Paul at any time, he can be reached as follows:
On 1st October 2018 the Inquiry asked UCL to perform a final check and on 11th October 2018 the UCL responded by saying:
Further to your email on the 1 October we have undertaken further searches and investigations to reassure ourselves and the Inquiry team that there is nothing to be found relevant to the Inquiry's Tenns of Reference. The UCLH Trust has undergone many structural and organisational changes in the last 30 years; the most relevant of these is that it was formed in 1994 following the merger of the Middlesex and University College Hospitals and at this time the Middlesex site was closed and then sold off and destroyed. The Haemophilia Service was held mainly at the Middlesex prior to 1994 and there is no non patient documentation to be found in storage from that time.
Since then the UCLH Haematology and Blood Transfusion laboratories and related offices have moved location several times and our search has not revealed any evidence of archived material. In addition the computer system used by the laboratory prior to 2000 was a home-grown solution which became obsolete and replaced since the millennium so there are no relevant accessible electronic records either.
The Physicians currently working at UCLH in Haemostasis have all been appointed no earlier than the 1990s and have confirmed that they have no record of any documents stored relating to the 1970's/80's. The previous Clinical Lead (now retired) was also contacted as part of our investigation and he has no knowledge or any relevant stored material. We have also made attempts to contact previous laboratory leads in the area to guide on the requirements of points A-J; the previous Blood Transfusion Laboratory Manager has confirmed that she had no knowledge of any such documents being stored during her time at UCLH.
With regards to your query about lists of patients receiving UK Plasma products and implicated batches, we can confirm that any such patients were reported via the vCJD 2004 notification exercise co-ordinated by the UKHCDO/National Haemophilia Database and the Health Protection Agency but we have not found any lists of those who received implicated batches in archived form.
Of particular interest to Factor 8 was documentation relating to the former Middlesex Hospital, this is because it was here that HIV testing on Haemophiliacs was first carried out from 1984.
On 12th September 2017 the Ham & High newspaper published a story that Factor 8 had contributed to, in relation to the secret HIV Testing carried out at the Middlesex Hospital in the mid-80s and the full story can be read here: